The Leukemia & Lymphoma Society
Join Our Fight against Blood Cancers
Every 9 Minutes…
As a Leukemia Survivor I know the hard battle that must be fought to survive. Every day 160 people are not so lucky. Please join us as we fight to raise $50K for a research grant to find cures that can save more lives. During my treatments, I met and became friends with Steph. I watched her help others along the way. This campaign is in her honor.
Stephanie Ann Lindemann was born August 27, 1998 in Washington, MO; the daughter of Steven Lindemann and Susan nee` Juengel. She passed away January 4, 2019 at the age of 20 in her home, surrounded by her loved ones. Stephanie attended Immaculate Conception Grade School and graduated from St. Francis Borgia High School in 2017. She then attended East Central Community College. Stephanie became an unexpected inspiration when was diagnosed at the age of 17 with Ewing Sarcoma. Her love of Disney films encouraged her to "just keep swimming" and thus became the mantra of being "Steph Strong". Stephanie loved playing softball and basketball and running track. She loved animals, cooking and food. She recently started gardening and added chickens to the family farm. Stephanie enjoyed designing and room makeovers. She also enjoyed planning vacations, amazon shopping, playing board games with her family and spending time with her loved ones. Stephanie's optimism and constant smile will be missed.
I think it is important to talk about the physical changes a young person can go through when dealing with a disease such as leukemia.
When I was 16, I myself was diagnosed with ALL Leukemia. My body has been through extreme physical pain and emotional/mental changes. You can see that throughout my journey I have had to face the horror of having a port inserted into my chest leaving a large scar right across my chest. I was nauseous for somewhere around 5 months straight, and there was even a point when I did not eat or drink anything for 3 weeks straight because I would get sick every time I ingested anything, including small things like lifesavers would cause me to throw up. When I first started treatment I was also on steroids that caused my legs to swell and practically double in size preventing me from walking. After my legs finally went down, they went the opposite direction and virtually had no muscle on them, also making me unable to walk. The nerve damage has affected my hands, feet and legs all the way up to my knees so bad I still have trouble simply standing for long periods of time, and cannot move my toes 100%. I now have EXTREME joint and muscle pain. I have had multiple lumbar punctures (using a needle in my spine to administer chemo) and so many chemo infusions that I’m not actually sure the exact amount of how many treatments I’ve had (if I had to guess I would say somewhere around 300?) including several 24 hour chemos, that caused mouth sores in my mouth to down my throat and also on my lips, where I was literally peeling the entire inside of my check off and had not to mention I still have more treatments to go. I was in the hospital just 2 days before Christmas, and the day after my 17th birthday. There were several other hospital stays besides that I just remember how horrible those two were. I lost my hair, lost my figure, my ability to walk and run, I even lost friends and a relationship throughout one of the hardest times of my life because it became too much for many to handle. Everyday I look back through what I have done and how much stronger I am mentally because of it, but I also know things will never be the same.
Kids who are going through the same things as me NEED your help to find a cure, I’m still fighting my battle today but unfortunately there are going to be many kids who will be diagnosed after me and i would want nothing more than a doctor to be able to sit the parents down and say “don’t worry, we have a cure”.
That is why this organization is so important to me, and I hope everyone who is willing to support my campaign feels the same way as I do
Fighting to Dodge Cancer Dodgeball Tournament
Who: High School Students Grades 9-12
When: Saturday, March 30, 2019 - 1pm Start, 1215 Check-in
Where: Wingbermuehle Activity Center - Borgia High School, Washington MO
Cost: $90/Team of Six Players including T-Shirt for each Player.
Cash or Check the day of the tournament.
Concessions - All money will be going to the Leukemia and Lymphoma Society (LLS)
Deadline is March 15th.
Donations may be made online at Leukemia & Lymphoma Society (LLS), as well as at the Tournament.